Without further ado, it's time for us to bring on Lisa and Phil. Thank you so much for coming to the conference and being part of it again. Like, you're you're here in 2022, back for 2023. And I I don't think I've had the opportunity to tell you, but it's it's bigger and bigger and badder and better. So last year, we had about 3,000 registrations before, and then NV has about doubled that. This year, we have 5,000 registrations. Last year, we had from 52 different countries. This year from over 90. And we just did a little shout out asking people where they're from. We had people come in from from England, from Wales, from Scotland, from Northern Ireland. We so we collected the full all the the devolved nations.

And we had people as far afield as Cambodia checking in. So it's a wonderful showing that we are the truly global thing that we aim to be. Right. Come on. You guys are eye of the storm. What the, like, what the hell has it been like?

Still had hair at the beginning of the year, and I wasn't quite so gray.

It's, yeah, it's it's I think what we have to say, Henry, at the start to everybody listening is, yeah, we are in the eye of the storm, but, actually, we're not suffering. The medication shortage, which we will talk about in in the fifty minutes or so that we've got with you, it is is not a laughing matter. It's a very, very serious thing. And I I I've seen your commentary on it. And and we I didn't I I achieved like, I I I have changed mood because I was so angry. Yeah. I and I was just like, this wouldn't happen, like, in the way they carelessly treat Your your analogy of this is like taking the wheelchair off somebody that can't walk you. I cannot think of better words to describe this bloody position that people are in.

I didn't worry I was gonna get in trouble. Yeah. I I said wheelchair away from someone who needs it. And it was just a because, like, this is something that so many of us need and to just, like, be so careless.

Yeah. It it's so we'll get to that. Okay. And and, yes, let's have a light hearted approach to the hour. But what I do wanna put a stick in the stand in and say, this isn't a light hearted subject, and it's a subject we're all cross angry and passionate about. And I don't I am pleased to see some coverage. You know? We we it it's 09:00 at night on a Thursday, and it's blowing hooly outside here in Lincolnshire. So let's let's enjoy the fifty minutes, but I don't want anyone to think that we're pouring cold water on what is an extremely difficult time for everybody. And we're we are at the eye of our personal storm as an organization, but we are not the patient without medication.

Who's having now to struggle and suffer with impairments and symptoms that they've managed to find a way through over the last x amount of years. And there's nothing we can say. There's nothing we can do other than try our best, but we do understand the gravity of this situation. And I wanna say that as an organization, but as a human being as well. We've got family, both of us with ADHD. And twenty years ago, we didn't have when we started this this work, but we both have now. We've got employees with ADHD, and they're all suffering the same as everybody listening. So please, please, please, Henry, you know how passionate Lisa and I are about this. Yeah. I do. And.

But we'll get we'll get to that, but I don't want anyone misunderstanding. I I left a joke with there's some very serious subjects here. Panorama, should we start there, Henry? Would would would that work as the light goes out in my my study? It's actually it's giving you better lighting, actually. Well, there you And wake me up. It's about like a pelican. It's very good. Speed at the moment. So should we start there?

Let's do it. So if I do a quick so the Panorama show came alive because I we we were very worried about from the get go. We participated in in in challenging the initial premise. The name did get changed because it was the initial title was ADHD, the false diagnosis, if memory serves correctly. And and we raised the point, which we continue to raise, to be fair, which was that you are doing this in a a nonbalanced way. You are not doing this properly, and and in doing so, you will cause harm. And you were the ADHD three sixty was the third organization in it. We actually so, obviously, we've continued like, I recognize how much ADHD three sixty does, and we've continued, obviously, to promote your Right to Choose pathway.

We actually get we we get letters and emails, people saying you shouldn't. Like, didn't you have you not seen the panorama? You should remove them. You shouldn't. And we obviously have not opted to do that, but it just it'd be interesting for you to know. What was your side of this? Well, so.

Lisa, you know, we've we've lived and and not slept through this last six months. And I think the first thing we need to say, Henry, is this we can come at this from our our perspective as an organization trying to help people who who have ADHD. This was incredibly damaging to ADHD globally. If we give you some for instances and there's some commentary here. Lisa's just sent me a text about it, which I do wanna pick up on. Anorama was misplaced. It was it was totally and utterly irresponsible television reporting that had no grounds to damage this community that we serve and are proud to be part of. And the BBC need to reflect on that. And, hopefully, the work that you've done that we've supported with with the the offcom complaint.

We'll we'll we'll be able to do something. So people get an idea. What's happened over the last six months is all those organizations that don't support the private sector delivering services for ADHD have basically ganged up on the private sector to actually see what they can do. And a number of companies have gone bankrupt. A number of companies have been put under extraordinary pressure, and all of that has ultimately affected the employees in those companies, but also the amount of patients they're seeing. I give you an example. Every single NHS commissioner for a contract that we had put a pause on sending those patients because of Panorama. That that travesty meant that the biggest supplier of services in Europe for ADHD.

No longer was serving through the NHS, and that is ridiculous. Absolutely bloody ridiculous. And Lisa has led the clinical team, and I've led the organization through responding to that. It ain't about us. It is about patients. And when I talk about the things that we've had to do, this isn't about, oh, woe is ADHD three sixty. Oh, poor Phil Anderson. Don't give a damn about that. And I know Lisa doesn't give a damn about herself. But it's the effect on the end patient that is really hurting us. There's some commentary in here that says, you know, it's a shame that ADHD three sixty have lost their NHS contract. Now we haven't. We absolutely haven't.

What Manchester have done as a collective of previous CCGs now on single ICB have decided not to commission services for ADHD. And what they wanna do is go away and have a think about it, and in the meantime, not do anything. Now that travesty of decision making is another wheelchair pulling exercise.

And Wait. Wait. Wait a second. Sorry. What they're not committing any service at all? What what happens if you're in Manchester and have ADHD? Do you have ADHD Manchester. Yeah. It doesn't exist. It.

It's and and, you know, if there's anybody from Manchester ICB listening to this, this this absolutely needs to be publicized. They have closed the door to ADHD whilst they make up their mind what pathway to run. We haven't lost the contract. In fact, the contracts we had in Manchester were because they cocked it up the first time, and they came to us to rescue them. And we rescued them, lock stock in two smoking barrels. When they opened the door to referrals in Salford, they contracted us to see 50 patients a month. And in month one, we got a 170 referrals. In month two, we got a 170 referrals.

And that continued through the duration of the contract. So they have no idea of the scale of the problem that they're actually trying to commission the service for. So we dealt with those 170 a month to the best of our capability. And when the contract expired, they extended it for us to carry on with the people that were still being referred to us. We've actually got to the final end of that list. So we were committed for a period of time contractually. It was extended because instead of sending us 50, they were sending us 170. At one stage, we were seeing 90 to a 100 patients a month for Manchester.

And they've they've stopped the contract because we've got to the end. Now interestingly, if we're gonna be bitter and twisted about it, and please allow me to because I bloody well am, but as we got to the end of their list that they provided us with, there were seven people left at the end of September. And the the letter that says, thanks for doing what you've done, but we're not gonna renew it for now whilst we go away and have a think. We're not gonna we're closing the pathway. And one of the reasons is there's only seven people waiting for an assessment in Manchester. And you you it's just incredible so that they can actually close the list, ask us to discharge that list, and then say there isn't a list anymore.

It's also Henry, you you run a fine establishment. You run you you're a very polite man. But please allow me at twenty past nine on a Thursday evening to just tell you that's a load of bollocks. And it it should not be allowed that commissioners can run things in this way. So the eye of the storm we talk about is having this impact on our patient groups because the the level of irresponsibility in commissioning is just unbelievable at the moment. And we've got 42 commissioning groups, I think it is, across The UK who cannot unify on a single description of what a good service looks like and how to commission it and how to contract it. And as as as a really big provider who currently, because of the way we've been tracked by the NHS.

Is making a huge financial loss every month because they're taking the patients away. We employ the clinicians. We employ the staff. They're not sending us the patients that they promised us, and now we're making a financial loss. We've seen other companies go bankrupt. We are working really hard not to do that. But we we should be under no illusions that the panorama and then the flat earth society, the people that don't believe the air the earth is round, jumping on the back of panorama is the most damaging thing that's happened to ADHD in the twenty years I've worked in this industry. It it is politically incredibly disappointing, and.

There is there is an expectation that we just laugh it off and carry on. And, actually, we're dedicated to patients. We're dedicated to improving people's lives, and we can't bloody get access to them at the moment, and it's crippling. But before I bring Lisa in to talk about the impact on the clinical team, just like and and what the clinical team have done, Just to put one complete myth and rumor to bed once and for all, we are still under contract to NHS England to provide ADHD services, just not for Manchester. And what that means is we still have an obligation under the under the the guidance and the framework, and we have a desire to meet the obligation for Right to Choose.

So any patient can still justifiably come to ADHD three sixty under Right to Choose. So whilst while Psychiatry UK have suffered as a consequence, like I've just been talking, and I know that team well, and they've closed their doors to both private and NHS at the moment whilst they're trying to recover their position, We are desperately trying to keep our doors open and Right to Choose. We have a substantial number of Right to Choose patients waiting for a service from us, and we are now switching our resources from NHS contracted work to to go to to go to Right to Choose. To give you a we we were seeing on contract 250 patients a month. Post panorama, that was pulled completely.

And the income that is required to pay our staff is required to keep the lights on in the building. Neither Lisa or I drive Ferraris. We don't go on big expensive holidays. This is very difficult to make money as a business out of this gig. It really is. The the the the the loss of 250 patients a month without anybody giving a hoot to the impact on the on the provider has been very damaging to us. Roughly, £250,000 a month income gone, but but we still got the wages, still got the overheads, and we're now making a loss. And that's 250 over four months. At least four months, that's over a thousand people have not had their treatments on the NHS. They should.

And I think that is absolutely something we should be shouting about as a travesty. And thank you to the BBC. Really grateful. I don't even watch the BBC at all now. I won't even watch strictly from dancing because I don't believe you should watch me on dancing properly. The the the crippling impact to the community.

Is absolutely outrageous. And as I hand over to Lisa, there's one one key message I wanna say to everybody listening to this. We've we've between ten and twenty thousand I can tell you the number. I can't remember it right now. 10 or 20,000 patients on our books. Every one of those patients is pissed off with what's going on, and every one of those patients is now facing time without medication because the the industry is cocked up. And every one of our patients is ringing us to find out what that is. And I'm really, really sorry, but we cannot we cannot pick up 10,000 calls a day. And I have got a huge heart. I've got a huge dollop of love for everybody that we say, but I'm really sorry. We cannot we cannot manage this. And and Yeah.

Patient with us.

And that's why I got so angry with the advice, which was like, g g everyone's GP needs to contact them to find out how much medication they've got, like, which is almost I've actually you know, one person commented that they got a text from their GP. And then that GP is supposed to speak to the specialist team, which in this case is you, and work out a medication plan. You're like like It's It's like yeah. Exactly. And at the same time, like, obviously, at same time, you're not allowed to start medication for anyone. So anyone struggling is is is out. It just I I the fact that that was the guidance, which was completely ridiculous, was just so just showed a complete lack of care.

Shocking. And and what that guidance did was push the responsibility into away from where the your responsibility should be. And the the pharmaceutical companies who who provide a great service when they provide great medicine, don't get me wrong. No. I sneaking. I'm not I'm not an anti pharma. No. I've got good friends in pharma who and thank god we have got good friends in contact with pharma because we're working very closely with them at the moment. But they have to be held to account for this. And I've I've I've.

I've written and had a meeting with the head of Takeda and make Elvance and Elvance. Don't say, you need to write to these patients and bloody tell them it's your cook up. Because at the moment, patients are Do you know so I I did meet with a.

Few days ago, not like and I met with others, and I I haven't been able get clarity on what's gone wrong. Like, do you do you know Yeah. Yeah. So.

The main production line and factory setting for ADHD medications in in our part of Europe is in Southern Ireland, and they've had process issues and quality issues in that production. And therefore, they've had to downsize what they're doing to rebuild the quality. And.

And is there only one supply chain? Because multiple medications have gone This.

Is this is exactly the key question, Henry, because what what what they've tried to do is build a factory in Germany to make sure there wasn't a single point of failure going forward. They haven't built it and got it online in time, and therefore, the single point of failure that they were trying to avoid has actually happened, and it's and it's caught them out.

Liz, then you gotta have a fair point. At least at least that second point is being made. Like, it was an identified problem that was in the process of being yeah.

They they they were trying they just they've been this is a perfect people talk about the perfect store, and this is a perfect shit store. We're we're we're coming up our YouTube algorithm. Yeah. Well, yeah, welcome to my world. The so in the recovery of Panorama and then all of that assurance that we've had to do with the NHS to recover that position, which we've done, we've then got this. And and it's absolutely catastrophic yet again for the ADHD this is gonna go down on record as the hardest year for the ADHD community ever with without a shadow of a doubt because this time last year I hope so just because I hope it gets better. Yeah. Well, no, it will get better. It will get better. And.

And you know, what we've all got to have is hope. And if we don't have hope, there's no blooming point. But at least Lisa could talk about the impact on the clinicians of all of this. Because can you imagine being the clinician that was outed on that panorama program who'd done absolutely nothing wrong? Absolutely nothing wrong. I'm not gonna comment on the standard shown by the other the other organizations. But for our organization, we absolutely showered ourselves in glory in that program, and yet we're still held to account for doing things wrong. And, Lisa, talk about talk about the the response of the clinical team maybe and and and where we've gone with that.

So Phil and I did did a meeting with our clinical team. And as you can imagine, it was quite an emotive meeting. And without exception, everybody was devastated because we know how hard we work as a team and and the training that's involved and, you know, just how experienced our guys are. And, you know, and they work really hard for our patient group. You know, they they want to change lives. They want you know, as one of our clinicians will say on a on an hourly basis, I want people to live their best life. And we knew categorically that a lot of people believe what they see on the television and in the news. So we we knew how devastating this was gonna be for the ADHD community. And it's really difficult to defend.

A position like that when when people believe that that that is actually the case. But our team were absolutely devastated because they know that they do a blooming good job. So collectively, they've pulled together. We proudly, the the some of the leadership team went to the World Congress in in May, which was just after the panorama program and managed to challenge the other person that was on the program from the NHS. And it it was an interesting conversation, shall we say, because, you know, we know that what we do is accurate. It is based on the DSM criteria. We gather so much information beforehand, and, you know, we're confident in our diagnosis. So we had that very frank conversation versus what may or may not happen in the NHS.

And the damage that we know it will do to the ADHD community based on will GPs believe the diagnosis from a private service or, you know, will will our patients get shared care. So I think since the Panorama program, we've we've pushed on as a team. We continue to do exactly what we did before. We looked at our, so so just one one part of what we did with our clinicians was to look at our training program and create a document, with everything that we trained our staff on in the last year. So we did a twelve month troll of our training program, and there were seven pages of a four of the training that had been being delivered to every single clinician. So it's been an interesting exercise in terms of.

You know, really trying to defend ourselves, but gather the evidence so that we know there are no gaps in our clinicians' knowledge and and expertise. And I think the other thing to say, and I think people don't think about our support staff as well. Because on the day that Panorama hit and, on the day that some of our, well, our NHS, contracts were halted, one of the team who managed one of our NHS contracts had just managed to onboard 32 of our NHS patients. And that takes a long time, but but they know that when they've done that, they can then go on to assessment. And she had to then call 32 patients and say, we need to just we can't do that assessment, so.

We'll get back to you when we can. And she was in absolute floods of tears because she knows talking to our NHS patients on an on a half hourly basis, the impact that that's gonna have on our our patients. And it's not just the patient. In fact, someone commented about those seven patients that are on the Manchester waiting list. Yeah. That's seven patients. But, actually, it's seven patients and seven partners and seven families and seven wider families and seven employees. So it's not just seven patients. It's the wider perspective of of what this is doing to to our our patient population and the wider society. And so I'm not happy that these seven patients on on that waiting list in Manchester that doesn't exist.

You know? And when we acquired that contract, for example, there was five years worth of patients waiting who thought they'd been referred to a service that actually didn't exist. So we've managed to sort that waiting list out. But, you know, as a service, our clinicians and our front office staff are equally frustrated and equally devastated, but are determined to keep going for our ADHD community. You know, they are everyone in our team is passionate about making That's.

That was that was one of the, yeah, obviously, I know you guys and I know a lot of people working within the ADHD world. This tarnishing of everyone private, and obviously you guys have been particularly as like just money grabbing, doing it, like, and you just you can get any kind of you just buy an assessment, was just so outrageous. And we obviously did big research. We got over 2,000 people, which clearly showed that actually patients felt they had If you looked at them, well.

I could make it like, if I was if I was a newspaper at this point, would make an act of, like, that the NHS numbers were worse, which they were, but it was very marginal. Well, the reality was they were almost identical. Like, the the grassroots, we did it at the very start of the conference. And and so this the whole idea that the the private rights use sector was.

Was was awful thing was absolutely I think that's a really good point. And I think, you know, one of the things that we've looked at in response to Panorama was the diagnostic rates. So they asked us how many patients do we diagnose. Oh, yeah. And so I thought, actually, I don't know that number, so let's go and look. But what we actually do, our onboarding system does a screen first. So an ASRS screen for an adult or a a snap for a child. And if you if it's a negative screen, we actually say, do you know what? Don't go any further. So it's free up to that point. There's no no money changers, hands. It is literally do this. Let's see if it's a positive screen. If it is, then we'll move forward. And if it's not, you know, don't bother.

And we screen out seventy eight percent of our patients who who do that screen. So, obviously, the ones that get through who have a positive screen, we still do our full assessment workup. But we've screened out loads who may actually have got to the NHS at some point and and being seen. So, you know, we we were really confident then that actually we do you know, we might diagnose a higher percentage than the NHS, but that's because we screen out before they even get to us. And I think, you know, it was a nice piece of work and a nice bit of data to to back up that we don't diagnose everyone. And do you know what? Was saying to Phil, you know, if you were to diagnose someone who who hasn't got ADHD.

And then start to treat them, you would start them with a stimulant and work all the way through the doses, and then that wouldn't work. And then you'd switch them and and titrate through that, and that wouldn't work. And then you'd go to a nonstimulant and titrate through, and that wouldn't work. And then you might go off license. That would take the best part of a year. And you know what? They are my heart sing patients who comes and we do our follow ups every three weeks. So I am not gonna diagnose someone with ADHD who's not got ADHD to then have a year of heart sync appointments because you they're not getting any better. You know? So it was.

Yeah. It it it was something that we would we would never do. We would never diagnose someone who's who's not got it. It's great that you brought those facts up, and it's something that.

I wasn't have been shared with me, Chris. It's great to have those out. And that was the point I was trying to make, which I managed to distract myself on, which was that there are so many people trying so hard to help people and for them to just get tarnished in this way. That just Just an hour? Yeah. Now, look, we've got some we do have quite a few questions coming in. And we need to talk through the medication and then do some questions. So let me bring Phil back in. So first question is, what are you going to you said you can't pick up the phone to everyone, and I've certainly have seen messages around talking about people being in long queues.

What would you say to your patients now trying to contact you, trying to to get in touch? So we are contacting every patient.

And we can do that by more controlled means. So every single patient has had at least one, if not two, letters from us, and those are also contained on our website as a reference point for even our non patients. This is what's happening. This is the best we can do. This is the advice we've got for you. So we're we're we're we're contacting our patients regularly and proactively because reactively, it's impossible. We've we last night, we ran a free webinar for patients about how to cope in the nonmedication availability crisis. I've just done an hour with a coach called Leanne. I'm sure you know of Leanne. Yeah. Yeah. She's brilliant.

She's absolutely brilliant. What she brings to it is youth and vitality, whereas crusty old men like me and moderately middle aged ladies like Lisa have a slightly jaundiced perspective, and I'll get on my back chair and wheel myself down the bedroom later. And Leanne brought youth vitality and and a good coach perspective on things you can do. And and the other thing that she brought, which was truly, truly, genuinely exciting was we should not lose hope. This is a six week blip, if if we can call it that. We gotta keep up. And and so what I'm saying But it's the people with like, there's a difference between.

Surviving through a tricky part and then people who've got critical things going on. Absolute absolutely. And then, like Without a doubt. So we've also written to all of the GPs for our patients. That letter has been signed off today. And in there, we're saying to them, look. Don't bloody come and ask us for what to do. I'm just learning your algorithm again. Don't come to us and ask what to do. Here's what to do. And for every patient, there will be a an option of what you can try to do. And the thing we've got to be very careful about is that what we medically ask people to do is the art of the possible. And it is no it is no use saying, come off you when you finish your Lvance, go on to immediate release dexamfetamine.

And because within an hour, there'll be no immediate release dexamfetamine in the world because they're not getting up to fill the gap. It's no use saying, come off your concerts that you can't get and go on to Xenidate or go on to Zagatin or go on to whatever. Because within an hour, those will have gone. Such is the scale of the problem. What we've gotta be giving is pragmatic advice of what you can and should do. And it's really sad, and it should never have been allowed to happen. But the best advice we can give to people is how to cope and keep hope. Because And and and in the session I did with The.

Summary just because it's brutal for people, but I think clarity is what's needed is that there isn't the the medication is not there. And, actually, the the national patient alert does say that the medication's not there and the replacement medication options aren't in quantity, aren't enough. And so without question, people are going to have a period without medication over this over this. And that's going to And there's a lot of conversations about people saying, take it one day in three. And.

I promise you taking it one day in three ain't gonna make you feel very well. That's gonna make you feel pretty poorly. So we're talking about exercise, diet, getting help, acknowledging the problem, talking to your boss at work about you're gonna have a problem. I've got a problem for the next six to eight weeks. This is how I need you to help me. This is a recognized disability under the course. I need your help. I need accommodations. And we've got to front it up. We can't afford to be doing what what some people are expecting us to do. It's a magic medication out of their way. It it's nothing to happen. This.

I'm I'm sorry to sound so severe about it. No. No. Look. I'm in this like, I opt for medication. I'm in this this is this is This is gonna feel like the pandemic for a while. We're gonna lose our freedom. We're gonna lose we're gonna lose the options to lead our best life that we have when when when we are are treated medically. And and we are gonna have to find coping mechanisms. And the the what the responsibility we hold is to proactively help our patients find those coping mechanism. And I am under that reason and at least Yeah. Solution. If we say medication is the best thing available and then we take it away, what's left is pretty short Shit. It's not gonna do the job. It's just not. And it's it's it's reality. And, you know.

No. I rail against the use of the word coping mechanisms when when we're talking. But in this circumstance, it's exactly correct. So It is what can we do to like like, we are not getting a diagnosis for for for fun and jollies. Like, it's really this is hard. Living life with this is hard. And so that like, and I thought actually your reality of talk to your boss, talk to your friend saying, this is gonna be a difficult period. And, like, things that I was have been able to successfully do in I'm I'm gonna potentially really struggle. And I think one of those, you know, that aspect of that inconsistency of ADHD that, yeah, I can do it. I'll do it then, and then I won't this time, and I'll be more forgetful. I'll struggle.

More to focus, you know, to to do that work to zone in. Like, it's all gonna happen.

And and and, you you know, we we we've there's there's a lot of comments coming in here. What what we what we should be doing and and, I'm going back I'm hocking back to the hour I've just done with with with Liam, which was a brilliant hour now. But I'm asking anybody who's got the time to reference back to that and that the that the the hour will be on our website as are the other resources as we build our resources to get give people hope and allow people to cope. And the most there's two things everybody should do. The first thing is they should write to their MP and complain about this travesty. There needs to be a public inquiry about how this has happened.

There needs to be the pharmaceutical industry needs to be called to parliament, and it needs to account for itself on how it can leave the mental health community in this in this terrible position and even through your algorithm again. The the we we we all need to write to our MP and require a public inquiry as to how this travesty has been allowed to happen. Because unless we hold people to account, it will be allowed to happen again. That that that is absolutely something we need to do. There is also a national petition that started to get 10,000 votes to ensure that this travesty is discussed in parliament, and I think we all need to sign. So if you've got 5,000 people on this tonight.

I want every one of these 5,000 people to sign that petition to make sure that parliament starts to ask the right questions about what is going on. Suppliers like us, we're we're we're big in the ADHD closed community. I'm massive in my own life, but we are insignificant in places like parliament. Mhmm. And we have to start to make an impression there. 5,000 more people will almost get us over the 10,000 votes line to have this discussed. And if we backed that up, if every one of us backs it up with.

A letter to our MP, and if you're struggling to write that letter cause you have not got your medication and your executive function isn't working, we will have a copy letter for you to fill them up on the website within forty eight hours for you to use to write to your dear MP, this is this is terrible. Blah blah blah. We we let me write the damn thing for you. I've not got a lot of faith in parliament at the moment, Henry. But unless we actually play the game and do our part, I'll complain that they've done nothing about it. We've got to force that to happen in parliament, and I believe there will be an inquiry if we push hard enough because this is all about Have they were there inquiries into others? There.

Was a period of supply chain for like, when I was speaking to the Guardian for whom I gave a quote, they were talking about that HRT was there was a supply issue there that they they and their point was a a big one that they felt NHS purchasing was the problem that it purchased on too bigger scale on too limited a scale of they didn't demand the the the wide range, which I think obviously is a big challenge when you're you're dealing with, you know Well, we link that you've created the things. And I think there is an I think people outside can often think that they're you know, it's it's as easy as making a corner and putting it in a.

A ready meal that that the pharmacist can be very, very difficult to make. And if they if they wanted to look into that at all, do you look into the history of HRT and learn how the original HRTs were? Absolutely. What my question is it's a horse urine.

What we've got what we've got is an NHS that is denying that ADHD is at the scale it is. They're denying access to services to people. They're not commissioning services. Manchester, a good example. And then and then they are not procuring medicine. They are not actually looking at the supply chain, and they're not holding that supply chain to account. This right back right through the whole damn thing. And I am I am absolutely 100% aware of how difficult it is for people. But the one thing that can be positive about it is for everybody to channel their inner self into something positive and avoid channeling this into something negative. Channel it into making a difference and seeking to influence.

Because there's no doubt about it. If we all get on the same bandwagon and we all champion the same thing, we will have something to aim at and something to focus on. And that is good for the ADHD community. Let's hyperfocus on influence. Let's hyperfocus on making a difference because that little burst of dopamine that will come from that daily thing that we could do to nag the MP to nag parliament, that little burst of dopamine is just a start, but it can give us hope. And I and I read Reddit, and I read social media, and I and I've made this plea today a number of times to the ADHD community. Get off Reddit. Get off that stuff that's sucking the lifeblood out of this debate. Love Reddit.

And it's like saying don't breathe.

And get on to get on to positive journeys. Get on to being positive. Give yourself hope. Because if you don't, this this is gonna continue to drag to drag you down emotionally. And to be fair, coming off your medication, you're not gonna have the bandwidth to drag yourself down emotionally. And that will be crippling for any of us who've worked so hard for you to see that happen. And what we've got to do is keep going on a positive footing and try our damnedest. Get get a mate who isn't ADHD. Get someone who's neurotypical to help you and support you, to get your executive functioning gaps filled by somebody else. Keep your exercise. Get exercising. Get your diet right. Don't go back to McDonald's. Don't go back to microwave food.

Don't do the things that you were doing beforehand. Help yourself. Get somebody to help you and tell your boss. Get those accommodations and absolutely make it. Someone's just said, thought you sound like an ADHD coach.

Yeah. Yeah. You know what? You're I'm gonna give you more, though. You're an a d ADHD motivational coach. You're you're the guy like Do you know what? Going strong.

The the the clowns I was gonna use a word that began in f and s and ended in wits. The clowns that are trying to commission these type of services are telling me that I'm too passionate about this and that they don't like the passion that we drive our service forward with. It's that passion that's gonna make a difference. And unless we have passion and unless we actually challenge the standard norm, unless we actually get off our backsides as professionals and challenge those very people who are making these poor decisions and make ourselves unpopular, we're not gonna bring about change. The earth is not flat, and I will not allow commissioners to tell me that man did not go to the moon and the earth is flat. ADHD.

Needs adequate services. It needs commissioning. It needs financing, and we need the medication to support our society. End off. And if these buggers don't wanna do that, I will hold them to account. That's correct. I will champion it. Yeah. I'll No. No. No. We're there. Like, what's we've.

Yeah. We we are we are As you know, we're here. We're we're we're in this place. We're getting we're getting a load of stick, Henry, at the moment because we can't answer the phone because of this problem. I'm really sorry we can't answer the phone. I am. We we're working with IT companies. We're we're we're employed more staff. We're making a loss every month. We're still employing more staff. We wanna do better. We wanna try and sort this. It's impossible, but it ain't gonna stop us trying, and it ain't gonna take away the passion. And here we are at 09:00 at night, giving people that message. Don't lose hope. Don't lose We've got a few things to cover.

We're gonna have to do them really fast. Okay? So we're in the we're in the fast question rounds. And then I've got to hand over to ADHD Australia in five minutes time. So we're gonna do that in at 09:55. They've got a tight schedule to to follow. And we've had a wonderful ADHD change. If, yeah, anyone who's waiting for Anna Bond on ADHD and law and Hassle on motivation, we're gonna be playing those tomorrow. We're shifting the clock by it now because we have had a wonderful 88 like, we just look. We've had a thing. And Australia's time zone needs to move an hour. And everything they've got is scheduled. Those ones we will prerecord, so we're gonna move them around because we are nothing if not good good good in a crisis and a changing.

With the moment that we need to. Right. Fast round. Okay? What my cards like. Right. You talked earlier about agreeing on an ADHD diagnosis. We have a massive problem that you diagnose. Then if I move, I've got to get diagnosed elsewhere. If I get a private one with you, GP won't accept it. Why is there not ADHD passporting, and how can we have it?

Great great question. What we've gotta do is lobby for change. And the the the What does a pass passport look like? Like, well, I'm using that as a shorthand for, like It's it's accepted elsewhere. It's absolutely in place. The National Health Service has the summary care record for every patient, and that goes with the patient wherever they go. These boogers just don't read it algorithm. These people don't read it.

Doesn't matter if you correct.

It's there. It's absolutely there, and it's in place. What we've got to do is lobby for change. Do you know there's a head of NHS procurement, and she's refused to see me. So at the end of this month, the only thing I can do to get to see her is travel to Riyadh in Saudi Arabia because she's there trying to sell NHS services into The Middle East, and she's gonna grant me half an hour in Riyadh. What's an absolute load of nonsense? Why is the NHS supporting services when they can't get it right on their home turf? We've got to influence change. We've got to be strong, and we've got to be united.

Have Shared shared care. I've got it. We've got so few minutes. Shared care, like, what's go what's going on?

GPs have the right to refuse shared care. GPs are saying they don't like Why are they removing not doing right to Choose Shared Care? Right. Because they don't understand it. They don't actually understand where the obligations sit, and the the expression that GPs use I welcome everybody to challenge their GP who says, we don't do shared care with the private sector. Because, actually, every GP practice is a private sector organization. No GP libraries. It's NHS. They're all under contract. They're all profit making, and they're all just not turkeys that wanna vote for Christmas. We have to challenge the established way of doing things. If a provider that's licensed to the NHS.

Applies for Sharecare, it should be given. End of story. Yeah. Absolutely. Yeah. And it's in the NHS constitution to make that happen.

What's your wait list for Right to Choose right now?

For Right to Choose at the moment, about three months. We're gonna bring that down. We we've had a meeting today of the clinical team.

So the Right to Choose wait list is three months right now? Well, at the moment, it's about three months.

I expect because of psychiatry UK's issues, it's gonna go and expand exponentially. We're trying to work through it at the moment. Why are you making a loss if you've got why can't you just flip to Right to Choose? Well, we are flipping to Right to Choose apart from the fact the NHS don't pay us. We have £500,000 of debt from the NHS. £500,000. Because mortgages don't wait. Right? They don't. And and and we have don't take NHS credit. We are we are paying we are paying wages, and the NHS is refusing to pay it because they don't like right to choose.

And they're challenging the contract Have they changed that? Have payment terms changed? Have they spread those out now? No. Are they always that awful? Absolute bloody nightmare.

It's an absolute nightmare. We have to challenge the establishment. We really can't sit down and let this happen. We we we've had to temper how many Right to Choose we've taken because we're not being paid for them. Broadway Pharmacy, our partner pharmacy, has £250,000 of debt for medicine that the NHS on the Right to Choose refusing to pay for. This is not right. This is you know? But we are we are gonna take on more Right to Choose. I've finished the letter today.

Which has been signed off to go to every commissioner saying, you might not like Right to Choose, but we're not giving you a choice. Here's the legal background. Here's the NHS framework. We're coming for you. You either pay us or we take it to court. And I will proudly take a commissioner to the small claims court to get what we're owed. And that's what we said to them today. You are gonna be taken to court for nonpayment, and we will turn Right to Choose into something that's actually for the right reasons. And it's it's interesting in other parts, like in Wales, for example, the NHS, I I believe. I know Right to Choose does not apply in Wales.

It has a payment obligation because it recognizes the impact a large organization has. I'm pretty certain it has a requirement to pay within I think it's sixty days. Yeah. But they recognize that. We've gotta go because Australia have gotta take over. You guys have been amazing. I like how the passion and I felt like if you've watched Wrexham, they they have a passion meter, which is the number of times he swears during the thing as it relates to his passion. You hit the passion meter bell right to the top. You're both amazing. Like, the work you do is extraordinary, and you're like like, there there are some things where you have a business which does good, and I do genuinely believe that that is what you have. And thank.

You for being here. Thank you for sharing everything with all the work you're doing. It's a very, very tough time for everyone. I your focus on your patients and the wider ADHD community in this period is just was wonderful to see. Thank you very much. I've got to say goodbye. You're amazing. And thanks for your.

Ongoing support and for the work you do, Henry. It's invaluable. And when our chips are down enough, we're on the floor. It's the comments from people that are coming in now that keep us going. We know we're here to serve a massive patient group. We're doing our very best. Henry, don't ever stop doing what you're doing either. If you have a day where you think you're gonna pull stocks and pack up, ring me, and I'll kick you backside. We need we need third sector advocacy as much as anything. And I know it's brilliant when we all work together. Do you have it? Gosh. It's hard. I have to say Yeah. Looking at and then to talk about donate people, like, we need the money. Like, it's this is tough ass.

Look. There's a lot of comments coming in of support for you, and I've tried to highlight some of them on on the screen. Right now, you'll be at the hard end of it with getting lots of quite angry calls. And so I want you to do look at those and see people who are understanding and appreciating and recognizing the passion and and seeing it. Like and I think you being here, being candid and honest is a wonderful thing, and it will have helped a lot of people. Thank you.

Thanks a bit to Australia. Look after yourselves. Everybody, look after yourselves during these difficult times, please. Don't give up.

Thank you. Well, goodbye, and thank you again.