2023 Global ADHD Conference Conclusion
Thank you. You too. Right. Wrap up time. Right. It's been wonderful. Thank you to Shanade. Thank you, everyone. I'm going to do the wrap up. I'm going to talk about some of the stuff we're doing for the next year, what our plans are, a complete real reworking of the ambassador program to tell you about, and so thank yous, and then we're out. We've completed our twenty four hours. And I'll give you the final fundraising table as well. If you want to still donate, either donate, go to globaladhd.com. Click donate. Or if you want to have some fun, you can donate via this platform. Scan the code in the side, and your name will be celebrated up there. And over 20 pounds of good confetti and over 50 pounds of fireworks.
We're just shy of 9,000 pounds. And yeah, we have risen over 8,000, which is an epic amount. And honestly, the wildly expectations is hugely needed, money is tight. This is difficult. Right. I'm going to show you. I made slides. Of course I did. Here you go. And I've actually reauthored it. You can see the yeah. So you can see overlay. For some reason, you can't oh, there you go. And there you can see me. Hurrah. I was trying to work out why I wasn't being shown. There you go. So we're closing out the twenty twenty three conference. I've been incredibly organized and done slides. And how dare someone in the chat suggesting that I was sloping off for a coffee. I was not. I was doing slides. Okay.
I'll senior quickly. We're going to talk about the problems right now. So I've had to sort of lay off. Either you could do a conference or go into battle with a conservative deputy chairperson. It's absolutely like, there is an absolute failure of leadership within this country on ADHD, and it is a failure of the NHS. This is a failure of the party in power, and it needs to change. And frankly, you know, we're in the middle of a national patient alert. There's lack of medication for people with ADHD. It's a huge, huge problem. And confetti, thank you very much. Thank you, Andy. That is wonderful of you. Thank you very, very much.
Yeah. We're in an absolute crisis, and it's a crisis. Now it was interesting. We spoke to ADHD Europe. What they told us was that the shortages aren't across Europe. They are happening in different places. And that's because different areas make different buying choices. You're in a queue for the stock. And if you have a buffer of stock that will deal with production issues, then obviously, you're gonna your population isn't going to struggle. If you have no buffer, very limited buffer than your population is because production issues happen. And at this time, they had been identified as a risk. We we learned from ADHD three sixty that the issue was there's a large central production in Southern Ireland.
A new central production is being created in Germany because of this single point of failure risk, and yet in that period, no stock kept. That is a that is a failure of of management. We've had the deputy chairperson, Lee Anderson, say the benefit system is too nice and ADHD is bad parenting. And it appears he goes around telling a story of people with ADHD You know, they've got five kids with ADHD, and they're really just milking the benefits system because if they've got disability, then it doesn't and he's intentionally attacking a family full of disabled people. And the fact that he thinks that's acceptable goes a long way to saying, how did the the stigma around ADHD? And it's absolutely outrageous.
Like, it is outrageous to completely devalue people with ADHD and struggling. Like, outrageous. Within the NHS, like, the problems are almost too many to mention. Right? Like, you've got the enormous problem of the wait list. We've done a massive FOI. It is going public with a national television channel next week. And that's why I have to be very coy on it. We'd hope to have it done now, but schedule is schedule. And it has shocking results, and we're using it to experience. And one of the things we're going to be creating is a postcode lookup. So you will be able to, fingers crossed, Matt, if you're watching, you know you've got a big responsibility on technology. So you can look up and find out what.
Your postcard is, what your area is, what the weightless information we have is, and or that we don't. Because in a lot of areas, we don't, and that's shocking. Right to Choose is only available in England. It should be available widely, but there's a very clear line of travel that it's getting shut down. And so there's a technical shutdown going on at the moment where the Right to Choose contracts with the providers are being moved from the ICB to the trust, ICBs being the top level of the NHS, trust lower level, and ICB commissioner, trusts implementer. You're only eligible to transfer to a Right to Choose outsource provider if they have an ICB contract, and the ICBs are removing those contracts and putting them down to the trusts. And.
When that happens completely, that will be the end of Right to Choose in the way that we know it now. And we need to fight to not only stop that, we need to fight to expand Right to Choose across the entire UK. We've got a massive passporting issue. Like, you get a diagnosis privately, you get a diagnosis in one area, and the next area won't accept it. And it's ridiculous on the NHS that it's not being accepted, which means that the NHS is then retesting with its complete lack of resources, is then retesting people again. Now it's because they they they feel that they they can't accept.
An ADHD diagnosis done elsewhere. We need to change that so that they can they can feel comfortable and they are happy. In York, they're depriving people of an ADHD assessment unless they're suicidal. Risk itself self harm or harm to others. So it's a risk to life and or in family court, having their family break out. That is outrageous. And not only have they prioritized those people, the trial's been running quite some time now, and they've seen none of them because they're still working through the cutoff of their old list. So it's outrageous, and it's outrageous that people aren't getting what they need. We've got children aging out before diagnosis where the waitlist of children is so long that by the time they get.
To the carers person, they're now an adult, they need an adult test, and carers can't provide it. We've got a failure of children transferring to adult care. So if you're a child, you can find yourself stuck and not able to go to the adult's path because the adult path has no seamless pathway. In many cases, we're seeing people being put on the adult list. So you're treated. You've got yourself in a place with success. And then suddenly, if you're opting for medication, that is taken away from you. And that is outrageous. It shouldn't be happening like that. These are the fights that we are we're gonna be having. We've got data failings. And I feel like this is a very mundane point for lots of people, but this is the.
Bedrock. This is the foundation on which we make change. Right now, children with special educational needs, SEND, they are in the Department of Education, they are just grouped together, SEND, with the exception of autism. So autism has a separate reporting, and so the government knows how many people have autism in in the school system. It knows the outcomes of those children. It does not know how many children with ADHD are in its system. It does not know the outcomes for those children, and we know that the outcomes for many are awful. Right? We know people who can bail out of education and falling into crime, and it's absolutely awful. But because they don't have this data, so they just wrap it up as s e n d. Look. If my.
My feet are in the oven, my head is in the the freezer, I'm of good average temperature. It's clearly nonsense, and that is the data they have. They think that needs to change. And from that data will come change because when we find the outcomes, we're then able to argue for the research, for the understanding, and change it. And I'd realized I was over the little things, so if anyone wishes to think. Diversity monitoring form. So at the moment, if you do a diversity monitoring form, it it asks you, do you consider yourself to be disabled? So many people with neurodiversity, with ADHD, spend an inordinate amount of time trying to make themselves feel that they're not disabled.
They don't tick this box because they're fighting so hard not not to be. And not working. And what we want to do is we need to work out our exact strategy, but probably it's we need to have a neurodiversity box. Are are you neurodiverse? NHS data so as a part of our big FOI, we found huge gaps in the data. And we have ICVs who don't know their wait list. How can you commission a service without knowing how many people need it? It's it is a phenomenal failure. And the fact that for ADHD, that's seen as acceptable is a big part of, you know, the stigma that people don't we're not seen as important. That's how that York trial is going to happen. And that frankly, that has to change.
And then from there, we're able to properly point to the issues. Our FOI that we've done has taken us around six months. We've had to write again and again and again. We we then, for a number, had to put in formal complaints because they weren't giving us the data. It shouldn't be like that. It should autism has done a great fight where there is now a dashboard. You can click on your arrow, find it, and it's done within NHS digital. Where's us? Like, we need to shine a light on this issue, and data is how we do it. Right. We are going to be reorganizing our ambassador program. And this is something that will be news news to a lot of our ambassadors because we're telling people about it now. So look, that map on the right.
Is the map of all the different ICBs in the NHS in The United Kingdom. And what we're going to do is reorganize our ambassadors. Should they wish they could stay as just a as a simp as an ambassador, but into those areas. And the the idea is they represent us. They go to the ICB and say, what's the wait list for adults? What is it for children? What are like and and shine a light locally and drive change. They meet with the council leaders, the head of adult services, the head of child services. And those council leaders meet with their NHS on a on a monthly basis at least, if not more, and they have an amazing lever for change. But this kind of national campaign for change done locally.
Like, has a huge power, and it's locally we've got to change it. We've As we will talk about next week, the variance across the country is enormous. So if you're interested in campaigning to change what it means to have ADHD in The UK and to change it in your area, please go to ADHD UK. Click the get involved button and click about becoming an ambassador. We want you, and we want to want to create a campaigning force in every area for change. That would be wonderful. Ambassadors also do fundraising, generally look to fundraise around £500 for the charity whole because we need the money. And in doing so, they are advocating as well and making a difference. They're telling people that ADHD is important, and that's a big deal too.
Do go and have a look at it. That is about to be the campaign for change, and it's going to center on you as an ambassador. And we've got a general election coming up. There are a lot of wannabe MPs who are going to be going to debates, going to stumps, and we need to make sure ADHD is asked about. And that's local boots on the ground making a difference. And if every one of the MP gets asked about ADHD, they're going to have to think about it. They're going to have to have an answer. And that is a big deal because some of them are getting elected. Okay. These are glorious, glorious comments, and then we're gonna wrap up. Did Henry sleep in that suit too? Henry's face is a work of art. I mean and so expressive with the eyebrows.
I've been hyper fixated with Henry. I think, I love watching him. He's lovely. Those are just so funny. It made me absolutely made me laugh. I think you knew it at the time because I started laughing on screen. Thank you. This is for everyone. Right. We're into the thank yous. Thank you to all the speakers. None of them got paid. All did it for love. All did it to make a difference. Thank you all the coaches for contributing their tips, their top tips. It was just wonderful. We wanted to express some of the people who support us day in, day out doing doing events.
We wanna talk about the contributing charities, making it true you go. But look at the list. ADHD Australia, ADHD Europe. Let's talk ADHD in Hong Kong, unlocking ADHD in Singapore, ADHD New Zealand, and, of course, Us ADHD UK. This is truly global and wonderful for it. And the aim is to bring us all together and learn the best of each other so we can be our best. We had 6,264 people register from 96 countries. It's an extraordinary number of people. It's wonderful. We had 440 people who donated, average of £18, and it all adds up. Our top donator donated £2,000, which is a big deal, and another who donated a thousand pounds. Just.
Something else. And in all I have to say, in all the maelstrom of everything going on, it it was was only when I went and looked, realized that those donations, we will go back. I mean, I'm gratefully thankful in person if they've left us their details because I did it anonymously too. But I wow. That's a big deal. But every donation has added up. And I've listed all the 100 countries there just so you can get an idea. USA, Belgium, Romania, Malaysia, Malta, Myanmar, Puerto Rico, Sudan, Rwanda, Algeria, Botswana, Tunisia, Cyprus, Sri Lanka, Poland, Japan. I mean, it's something else. Like, it's something else. That's the total. £8,794.50. I mean, holy moly. It's it's extraordinary. I thank everyone for their donations.
It's a it's a big deal. But it's the people in the background I've got to thank. Neil Mankey and Max Daily, trustees backing this all the way. Kathleen and all our volunteers. So Kathleen's our lead volunteer. She's been working tirelessly in the background. She's been organizing volunteers across all of our events. She's been doing this herself. A lot of the comments you've seen in the responses have been her. She's been tweeting out commenting out on social media. She's doing so much. I gotta do a special shout out to Rob and Jody. They are our our lead Facebook moderators with with others. They do extraordinary work. It's actually a really tough gig.
People who've been watching for some of this will have seen that we've had some pretty trollish comments of some people jumping in to try and ruin an important event. Oh, thank you so much. Thank you, Lorraine. It's a good confetti. Deleted, I think, 20 pounds. That was wonderful of you. Thank you. And I want to do a special account to Anne, Joe, Chris, and Matt. They've been helping organize the conference. They are the real in this machine and have been doing a lot of work in this in this run up and yesterday and today. They've been wonderful and impossible to do without. They've been absolutely wonderful. And, yeah, so thank you. That's it. We're done. We're not.
We're running five minutes. Would just be wrong to finish on time. I think we can all agree with that. Look, do continue to get involved. We're not going anywhere in the next year. Obviously, we've got plans for the twenty twenty four Global ADHD Conference. I think we've roughly doubled in size this time, so let's look to do that again. It's been incredible. There are so many wonderful people. The wonderful people watching, being involved, all those comments, all the people in the back here, all the speakers, all the volunteers. It's something special. It's something special being in sort of center of this maelstrom as as I am. It's it is.
You see a lot of people being wonderful, and it's such a lovely thing. It's one of the great privileges of of doing doing this. That's it. I've thank you so much for joining. Thank you for donating those who did. Thank you, everyone, for being here. Thank you, everyone, for all all that you did. And it's been an absolute delight. I look forward to doing it next year. Thank you. Oh, and thank you, Jonathan. You're finishing us on some graffiti. That is beautiful. Thank you.
